{"id":3197,"date":"2022-11-20T18:26:50","date_gmt":"2022-11-20T17:26:50","guid":{"rendered":"https:\/\/www.runboteam.cz\/?p=3197"},"modified":"2022-11-20T18:26:50","modified_gmt":"2022-11-20T17:26:50","slug":"mikulassky-beh-v-liberci-2022","status":"publish","type":"post","link":"https:\/\/www.runboteam.cz\/?p=3197","title":{"rendered":"Mikul\u00e1\u0161sk\u00fd b\u011bh v Liberci 2022"},"content":{"rendered":"\n

Akce Mikul\u00e1\u0161sk\u00fd b\u011bh v Liberci 2022<\/a> u\u017e je za rohem\u2026 A kam vlastn\u011b zam\u00ed\u0159\u00ed 100 % sumy z dobrovoln\u00e9ho startovn\u00e9ho leto\u0161n\u00ed akce? Rozhodli jsme se b\u011b\u017eet na podporu mali\u010dk\u00e9 Eleonorky Tr\u010dov\u00e9 z Liberecka. Jej\u00ed podrobn\u011bj\u0161\u00ed p\u0159\u00edb\u011bh si m\u016f\u017eete p\u0159e\u010d\u00edst na jej\u00edm FB V\u00edtr do plachet pro Eleonorku<\/a> \u010di webov\u00fdch str\u00e1nk\u00e1ch https:\/\/vitrdoplachetproeleonorku.cz\/<\/a><\/p>\n\n\n\n

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V dubnu roku 2022 bylo t\u00e9to mal\u00e9 princezn\u011b diagnostikov\u00e1no vz\u00e1cn\u00e9 genetick\u00e9 nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed SMA neboli spin\u00e1ln\u00ed muskul\u00e1rn\u00ed atrofie, typ II. I p\u0159esto, \u017ee ji byla nemoc diagnostikov\u00e1na relativn\u011b v\u010das a byla zah\u00e1jena neprodlen\u011b l\u00e9\u010dba zvan\u00e1 genov\u00e1 terapie. \u010cek\u00e1 ji je\u0161t\u011b nejasn\u00e1 a nelehk\u00e1 cesta k tomu, aby se jednou mohla sama postavit na no\u017ei\u010dky a poznala tak, co znamen\u00e1 \u201cst\u00e1t nohama pevn\u011b na zemi\u201d.<\/p>\n\n\n\n

K tomu je zapot\u0159eb\u00ed mnoho finan\u010dn\u00edch prost\u0159edk\u016f na zaji\u0161t\u011bn\u00ed l\u00e9ka\u0159sk\u00e9 a rehabilita\u010dn\u00ed p\u00e9\u010de nehrazen\u00e9 ze st\u00e1tn\u00edho zdravotn\u00edho poji\u0161t\u011bn\u00ed v podob\u011b nejr\u016fzn\u011bj\u0161\u00edch rehabilitac\u00ed, dal\u0161\u00edch cvi\u010den\u00ed a z\u00e1jmov\u00fdch krou\u017ek\u016f k podpo\u0159e pohybov\u00e9 aktivity, rehabilita\u010dn\u00edch pobyt\u016f, na po\u0159\u00edzen\u00ed ortopedick\u00fdch, rehabilita\u010dn\u00edch, kompenza\u010dn\u00edch a zdravotn\u00edch pom\u016fcek.<\/p>\n\n\n

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A na t\u00e9to cest\u011b bychom j\u00ed r\u00e1di podpo\u0159ili a pomohli ji uhradit \u010d\u00e1st rehabilita\u010dn\u00edho pobytu v Centru H\u00e1jek. Ten Eleonorku \u010dek\u00e1 na p\u0159elomu \u00fanora a b\u0159ezna 2023. Bez va\u0161\u00ed laskav\u00e9 pomoci to v\u0161ak nezvl\u00e1dneme. Eleonorka se bude bohu\u017eel pot\u00fdkat s nemoc\u00ed cel\u00fd \u017eivot, ale my pro ni m\u016f\u017eeme alespo\u0148 b\u011b\u017eet a pomoci ji proplout jej\u00edm \u017eivotem alespo\u0148 trochu snadn\u011bji. Pob\u011b\u017e\u00edte s n\u00e1mi?<\/p>\n\n\n\n

U\u017e v ned\u011bli 4. prosince 2022 startujeme ve 14 hodin od libereck\u00e9 radnice.<\/p>\n\n\n\n

Registrujte se tady: https:\/\/www.runid.cz\/list\/mikulassky-beh-v-liberci-2022\/<\/a><\/p>\n\n\n\n

D\u011bkujeme! \"\ud83c\udf40\"<\/p>\n\n\n

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Akce Mikul\u00e1\u0161sk\u00fd b\u011bh v Liberci 2022 u\u017e je za rohem\u2026 A kam vlastn\u011b zam\u00ed\u0159\u00ed 100 % sumy z dobrovoln\u00e9ho startovn\u00e9ho leto\u0161n\u00ed akce? Rozhodli jsme se b\u011b\u017eet na podporu mali\u010dk\u00e9 Eleonorky Tr\u010dov\u00e9 z Liberecka. Jej\u00ed podrobn\u011bj\u0161\u00ed p\u0159\u00edb\u011bh si m\u016f\u017eete p\u0159e\u010d\u00edst na jej\u00edm FB V\u00edtr do plachet pro Eleonorku \u010di webov\u00fdch str\u00e1nk\u00e1ch https:\/\/vitrdoplachetproeleonorku.cz\/ V dubnu roku 2022 bylo t\u00e9to mal\u00e9 princezn\u011b […]<\/p>\n","protected":false},"author":1,"featured_media":3202,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[],"_links":{"self":[{"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/posts\/3197"}],"collection":[{"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3197"}],"version-history":[{"count":1,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/posts\/3197\/revisions"}],"predecessor-version":[{"id":3203,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/posts\/3197\/revisions\/3203"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=\/wp\/v2\/media\/3202"}],"wp:attachment":[{"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3197"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3197"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.runboteam.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3197"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}